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Depressed about hospital stay

Jul 10, 2008 12:00AM - 5 comments

I am so depressed by what happened in the hospital.  Stupid Dr's anyway.  What I was told that would be done wasn't done except for the bone marrow biopsy.  While I am trying to remain hopeful that I don't have leukemia or any other bone marrow disorder, I am left with living the rest of my days in pain from the Still's.  I don't know why I feel so bad about this?  I will feel better I think when I know for sure that this is not cancer.

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by Melissa70817, Jul 10, 2008 11:18AM
I'm so sorry all of this is happening to you.  I wish there was something I could do to help.  Just remember you are in my/our thoughts and prayers and anytime you need to talk we are here!

We love you

Melissa

by Cosmobirdy, Jul 11, 2008 05:15PM
Hey Ada,

I'm so sorry this all happened, and that the hospital experience went like it did.... it WILL NOT be leukemia!!!  PM me if you want to or feel like it..... haven't been on the forum in forever.  Soo tired...sooooo bummed out by how things have turned for me, too - Tysabri is kinda scary.....plus so much else going on...:)  You are always in my thoughts and prayers girlfriend!  Sending lots of hugs to you....talk to ya soon.....gonna take a nap now, I just got back from work and am totally shot.  Bye for now...

Love ya,
Rita

by labelcomp, Jul 27, 2008 02:47PM
I have the same problem.  These doctors just had good grades, got into medical school and passed exams in my opionion!  They have no creative thinking, no openess to anything that wasnt taught to them.  I feel like the medical community is stagnating and they are not going to find anything new because they refuse to listen to the patient and make new connections that woudl lead them to finding causes and cures.  We have to be very careful not to spend years trapped inside of thier simple minded, lazy, diagnosis' - they make us wait until we are 60 and we have problems, - no preventative care at all...

keep fighting, and keep going to doctors until you find one willing to do the tests you want done.  I have had doctors so angry just for asking them to do bloodwork!  Typically the symptoms are not even there when you finally get the appointment!

by labelcomp, Jul 27, 2008 03:05PM
oh you know. I forgot to mention the most important thing: My mom has the same symptoms as you do, and has had them for years.  She was diagnosed with MS, with the brain scan and spinal tap, and the medications did her more harm than good.  Recently they found out that she had a very low B12 level, that coused all of her problems, and that she had it for years undetected!  I went online and looked this up, and sure enough, they mis-diagnose MS for chronic lack of B12-all the time!  Now she has to have B12 shots every week, and she is doing better, she thougth that she was dying from just the symptoms you have.  Unfortunatley, she is unwilling to give up on this MS diagnosis, which is just an easy way of them saying that they have no idea what is wrong with you.  Needless to say, if the doctors would have done a B12 test on her years ago she wouldnt have had the extensive nerve and joint damage to her body as she has now from no B12 absorbtion.  If you havent has one, ask your doctor to give you one.

by Farrahlicious, Aug 27, 2008 12:20PM
NO LEUKEMIA, ya hear? it's not! you'll feel better soon!
I'm sorry about how bad the experience was, but it's over now. You're safe and back to our silly forum where you can take your shoes off, grab a muffin and relax. Ok, i'm making up this fantastic "Admiral's Club" sort of lounge, but hey, it's our forum and we can make it how we want it to be!
Cheer up, swetie! maybe i'll dance for you like i do for my cats? Jen said excercise was good, so since i'm a slob, i started dancing for my cats with my Ipod. They usually run away in fear, i need to work on my moves....
Hugs!
Farrah

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