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hi. new here. looking for help or learning about this.....
Jun 21, 2008 02:25PM
- 9 comments
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boring backround
athletic whole life.
eight months ago. walking across street, in a cross walk being a good boy, car hit me. going pretty fast i was told 20. flew between 15-20 feet and the weird thing is i was wearing shorts and short sleeve shirt. not one cut. all impact was in my left buttocks and higher part of left leg then my friend said i put my hands down right before i hit street.
anyway. since then. i have yet to find any doctor to help. symptoms have only progressed
from emt kind of laughing about it, er not sure what happened but they just sent me out,
month or so later had fractures in tib / fibula. not serious.
two weeks after that a huge hump in my left back. told by ******* doc it was "muscle spasm"
-then right shoulder dropped
-left leg length issue now of two inches. was ranked one in tennis as junior in calironia so i try to tell people i wasn't like this before
-hips rotated so i can't stand straight anymore
and no help.
at this point all that is left is a physiatrist. fine. except it takes my neurologist forever to send the **** of to stanford who already denied me once for neuro cause my case was to 'complicated" or something
i am tried. angry at the doctors. angry at the people around who care i don't know what amount. i've driven straight close to every day to doctors appt's.
i now know one should have an advocate. i have people would could be them. but they don't find it important.
head is messed up. there is this saying called "sense of smell" i have this thing i made up called "sense of time"
i could have seen you yesterday or six months ago. it's the same.
yesterday was friday. i would have bet money it was monday.
etc etc
i don't know what journals are for here. so i am sorry i bore you.
reese
stuck in oakland from new york
29
athletic whole life.
eight months ago. walking across street, in a cross walk being a good boy, car hit me. going pretty fast i was told 20. flew between 15-20 feet and the weird thing is i was wearing shorts and short sleeve shirt. not one cut. all impact was in my left buttocks and higher part of left leg then my friend said i put my hands down right before i hit street.
anyway. since then. i have yet to find any doctor to help. symptoms have only progressed
from emt kind of laughing about it, er not sure what happened but they just sent me out,
month or so later had fractures in tib / fibula. not serious.
two weeks after that a huge hump in my left back. told by ******* doc it was "muscle spasm"
-then right shoulder dropped
-left leg length issue now of two inches. was ranked one in tennis as junior in calironia so i try to tell people i wasn't like this before
-hips rotated so i can't stand straight anymore
and no help.
at this point all that is left is a physiatrist. fine. except it takes my neurologist forever to send the **** of to stanford who already denied me once for neuro cause my case was to 'complicated" or something
i am tried. angry at the doctors. angry at the people around who care i don't know what amount. i've driven straight close to every day to doctors appt's.
i now know one should have an advocate. i have people would could be them. but they don't find it important.
head is messed up. there is this saying called "sense of smell" i have this thing i made up called "sense of time"
i could have seen you yesterday or six months ago. it's the same.
yesterday was friday. i would have bet money it was monday.
etc etc
i don't know what journals are for here. so i am sorry i bore you.
reese
stuck in oakland from new york
29
There are 2 things that come to mind (although I am not a doctor).
1) When you landed with such force/volocity, your brain may have 'bounced' in your head, causing it to hit and bounce off of your skull. The same things happen to babies with shaken baby syndrom. The 'bounce' can cause the brain itself to bruise and swell - both of which can cause symptoms like poor muscle control and decreased/altered brain fuction.
2) Your symptoms also remind me a little bit of a stroke victim (here again, a brain issue). Strokes can cause people to loose muscle control of portions of their body. This might be why you are having trouble with your shoulder drooping.
The brain controls so many fuctions throughout the body, that an impact injury (even if it is an indirect impact) can reek havok. If I were you, I would go get a brain scan and see if there is swelling, or even some sort of bruising or even a clot forming.
I am no medical professional by any stretch of the imagination, but I wouldn't doubt the possibility that landing so hard on your butt could have caused internal bleeding (a bruise is definately a sign internal bleeding), and if there is internal bleeding, there can be blood clots. Blood clots have been known to travel to the brain. Just things to consider.
1) When you landed with such force/volocity, your brain may have 'bounced' in your head, causing it to hit and bounce off of your skull. The same things happen to babies with shaken baby syndrom. The 'bounce' can cause the brain itself to bruise and swell - both of which can cause symptoms like poor muscle control and decreased/altered brain fuction.
2) Your symptoms also remind me a little bit of a stroke victim (here again, a brain issue). Strokes can cause people to loose muscle control of portions of their body. This might be why you are having trouble with your shoulder drooping.
The brain controls so many fuctions throughout the body, that an impact injury (even if it is an indirect impact) can reek havok. If I were you, I would go get a brain scan and see if there is swelling, or even some sort of bruising or even a clot forming.
I am no medical professional by any stretch of the imagination, but I wouldn't doubt the possibility that landing so hard on your butt could have caused internal bleeding (a bruise is definately a sign internal bleeding), and if there is internal bleeding, there can be blood clots. Blood clots have been known to travel to the brain. Just things to consider.
well i must say you have said something a few people who i trust have said. i have a huge defense mechanism about mental stuff. just because i have "mental issues" so the last thing i like to hear when i can physicall watch see changes like in my right leg length and change in back is brain induced.
what is really ******. is my main neuro go at this plaace called john muir wrote stanford and they faxed back saying they wouldn't see me because they didn't have a neuro dept that could help me
it is and was very hard after you go through something external that doctors would throw the brain thing back at me because of my med history. i have no med / physical history just lots of mental / emotional manic depressive stuff..
but i am more than comfortable saying that months afterwards when i finally figured out i had a concussion that my mind no longer rememembered like it used to and that i have, i made this expression up, no sense of time. if i had seen you a month ago. it could be yestereday to me.
i was / had been planning to go back to NYU where i'm closse with the head psycg / neuro guy and have him check me out because he knows me. but i have yet to find out ****.
today i get x rays for my legs to find out how long one is to the other
then call stanford to get into a new dept
and this other place called valley medical center
god that is really ******* amazing you said that. me. i thought that's not possible i had no blood and my doc at mclean would say what you did.
stupid questiion. what would you do for me. since everything is just progressing.
got into ucsf and the guy blew me off. made me touch my nose and fun games like that.
i really appreciate what you said
as of this moment i am trying physiatrist - physiatrist. i don't know what else to do?
oh. a good friend of mine. the 2nd person who has been caring. said the same thing to me when he saw me. "reminded him of a stroke person" 2nd nicest person and i've only seen him twice.
very few people who the gift of imagination with empathy.
the hardest part so far of this is not the "accident" it's been the people and doctors
thank you so much again
reese
what is really ******. is my main neuro go at this plaace called john muir wrote stanford and they faxed back saying they wouldn't see me because they didn't have a neuro dept that could help me
it is and was very hard after you go through something external that doctors would throw the brain thing back at me because of my med history. i have no med / physical history just lots of mental / emotional manic depressive stuff..
but i am more than comfortable saying that months afterwards when i finally figured out i had a concussion that my mind no longer rememembered like it used to and that i have, i made this expression up, no sense of time. if i had seen you a month ago. it could be yestereday to me.
i was / had been planning to go back to NYU where i'm closse with the head psycg / neuro guy and have him check me out because he knows me. but i have yet to find out ****.
today i get x rays for my legs to find out how long one is to the other
then call stanford to get into a new dept
and this other place called valley medical center
god that is really ******* amazing you said that. me. i thought that's not possible i had no blood and my doc at mclean would say what you did.
stupid questiion. what would you do for me. since everything is just progressing.
got into ucsf and the guy blew me off. made me touch my nose and fun games like that.
i really appreciate what you said
as of this moment i am trying physiatrist - physiatrist. i don't know what else to do?
oh. a good friend of mine. the 2nd person who has been caring. said the same thing to me when he saw me. "reminded him of a stroke person" 2nd nicest person and i've only seen him twice.
very few people who the gift of imagination with empathy.
the hardest part so far of this is not the "accident" it's been the people and doctors
thank you so much again
reese
Hi Reese,
I just want to say I am so sorry this happened to you. Do you have a lawyer? Did they catch the person who hit you? I hope at least, for your sake, that they did and you got some kind of settlement.
I feel for you getting the run around by doctors. I have several health issues, and I have to tell you I don't have a very good opinion of doctors. I think most of them are idiots who really could care less what's wrong with you. There are good ones, but very difficult to find them. You are so right when you say you need an advocate. That's why I asked about a lawyer. Do you have any family to help you out? I'm sorry I don't really know what to tell you, but the one thing I can think of in the meantime is a Pain Management doctor. Maybe they can at least give you something for your leg pain until you can get more help.
Good luck.
Cindy from NJ
I just want to say I am so sorry this happened to you. Do you have a lawyer? Did they catch the person who hit you? I hope at least, for your sake, that they did and you got some kind of settlement.
I feel for you getting the run around by doctors. I have several health issues, and I have to tell you I don't have a very good opinion of doctors. I think most of them are idiots who really could care less what's wrong with you. There are good ones, but very difficult to find them. You are so right when you say you need an advocate. That's why I asked about a lawyer. Do you have any family to help you out? I'm sorry I don't really know what to tell you, but the one thing I can think of in the meantime is a Pain Management doctor. Maybe they can at least give you something for your leg pain until you can get more help.
Good luck.
Cindy from NJ
hi cindy,
just saying what you said is more than most. when it happened i didn't think it would effect me mentally / emotionally. i didn't think it was that big of a deal. i didn't have any marks. that was all i thought about for the first month. like a mathamatical equaltion. how does one get hit by car going 20 mph and get thrown fifteen to twenty feet and have no cuts....when i was on the cement the first thought that came to me was i should be... i don't think it's fair to say the last word there.. my friend was there. he told me details since he was walking just in front of me. . i could also tell later because i had an enormous bruise on my left buttocks and upper left leg.
it's a good question you asked about the car. that is the only person i feel really sorry for. she stopped. i used to live in this area of l.a. in hollywood. i remember, i think this is real, after i got up off the street that she came over just like you would imagine you would be if you had done it. shaking in just terror. i've never had an ounce of anaything but kind of sorrow towards her. though having lived in l.a. i should probably know better.
in terms of support.
well i was told at first. "you'll never get a lawyer to take your case" and was told i should but it on my auto insurance in terms of lawsuit stuff. that was another thing that i pounded my head over. i am staying with my mom and step dad. they have been utter hell. she said the above or both did. only two people have given me support. one is in arizona. the other i've seen twice.
so if one was to ask me what has truly been the most painful thing?
as of now. i haven't really deal with the "event" the most painfult thing have been the people around me. if someone says something, doesn't matter the word or manner, it's the thing behind it that touches you. i feel like i want to give them a pile of gold. instead it causes the opposite. hate and anger. which are always the surface of the other thing - being hurt
doctors.
was told the hump on the back was a muscle spasm. three months later another doctor said the same thing. that or i would get scoliosis. i drove a thousand miles by now. which is hard when your neck has a protruding disk and other things. but i had no other way. no one would do anything.
i think that caused things to be a lot harder. I think i've learned that everyone needs an advocate. someone to come with them and say no he didn't look like this.
what is strange is how ucsf the great hospital from what i have told i have been nothing but utterly humiliated by. first time i started to cry. second time i wanted to beat the living hell out of the guy. "your legs are fine" "your hips. you live with them" but you're good.
my ******* right leg is two inches longer. had a CT SCAN today of the legs. i'm not a radiologist or a doctor but i can tell it doesn't look great.
lawyers?
well i didn't take my mom's advice. a friend i know - knew a lawyer through her family. i would say he has been pretty awful. doesn't think much of the "case". my friend in arizona used to live here and her husband works on the opposite side so he knows people here and will help me.
thank you from bottom of my heart
cindy
how long have you been hanging around this site for? i believe you can find more information here and other places if that is what you are looking for.
new jersey? my only expierence is in hoboken.
just saying what you said is more than most. when it happened i didn't think it would effect me mentally / emotionally. i didn't think it was that big of a deal. i didn't have any marks. that was all i thought about for the first month. like a mathamatical equaltion. how does one get hit by car going 20 mph and get thrown fifteen to twenty feet and have no cuts....when i was on the cement the first thought that came to me was i should be... i don't think it's fair to say the last word there.. my friend was there. he told me details since he was walking just in front of me. . i could also tell later because i had an enormous bruise on my left buttocks and upper left leg.
it's a good question you asked about the car. that is the only person i feel really sorry for. she stopped. i used to live in this area of l.a. in hollywood. i remember, i think this is real, after i got up off the street that she came over just like you would imagine you would be if you had done it. shaking in just terror. i've never had an ounce of anaything but kind of sorrow towards her. though having lived in l.a. i should probably know better.
in terms of support.
well i was told at first. "you'll never get a lawyer to take your case" and was told i should but it on my auto insurance in terms of lawsuit stuff. that was another thing that i pounded my head over. i am staying with my mom and step dad. they have been utter hell. she said the above or both did. only two people have given me support. one is in arizona. the other i've seen twice.
so if one was to ask me what has truly been the most painful thing?
as of now. i haven't really deal with the "event" the most painfult thing have been the people around me. if someone says something, doesn't matter the word or manner, it's the thing behind it that touches you. i feel like i want to give them a pile of gold. instead it causes the opposite. hate and anger. which are always the surface of the other thing - being hurt
doctors.
was told the hump on the back was a muscle spasm. three months later another doctor said the same thing. that or i would get scoliosis. i drove a thousand miles by now. which is hard when your neck has a protruding disk and other things. but i had no other way. no one would do anything.
i think that caused things to be a lot harder. I think i've learned that everyone needs an advocate. someone to come with them and say no he didn't look like this.
what is strange is how ucsf the great hospital from what i have told i have been nothing but utterly humiliated by. first time i started to cry. second time i wanted to beat the living hell out of the guy. "your legs are fine" "your hips. you live with them" but you're good.
my ******* right leg is two inches longer. had a CT SCAN today of the legs. i'm not a radiologist or a doctor but i can tell it doesn't look great.
lawyers?
well i didn't take my mom's advice. a friend i know - knew a lawyer through her family. i would say he has been pretty awful. doesn't think much of the "case". my friend in arizona used to live here and her husband works on the opposite side so he knows people here and will help me.
thank you from bottom of my heart
cindy
how long have you been hanging around this site for? i believe you can find more information here and other places if that is what you are looking for.
new jersey? my only expierence is in hoboken.
Hi reese,
I am up at this ridiculous hour because of pain, I can't sleep. My whole back is killing me. Funny you mentioned the bad disc in the neck--I have two herniated discs in my neck, and my lower back is messed up too and my hips. I have arthritis in my knees and they diagnosed me with fibromyalgia, which is pain in the muscles. Every day something hurts. However, I am much older than you. When I was your age I felt great. I have a son, 21 yrs. old (he is studying in China right now), but anyway, he has neck problems also, my poor baby. I think he did it lifting weights at the gym, so whatever you do, don't do that!
I go on these type of boards to try to help myself, since doctors are not much help. Like you said, they say everything is fine when you know it's not. If it was fine, no one would go to see them. Do they think we WANT to be there? I get so frustrated. My husband tells me, go to another doctor. I keep trying, but I get burned out. My husband just doesn't want to hear me, he doesn't really care about my pain. We're married a long time, he's OK, but he's not a *talker.* So I come here for support.
NJ is OK. I actually used to live in California. We lived there for two years, I had my son in a hospital in San Jose. It was a really good time in my life. I was young, thin, healthy. Oh, well, I guess I better try to go back to bed, see if I can get any sleep. You can talk to me any time. I'm around a lot.
I am up at this ridiculous hour because of pain, I can't sleep. My whole back is killing me. Funny you mentioned the bad disc in the neck--I have two herniated discs in my neck, and my lower back is messed up too and my hips. I have arthritis in my knees and they diagnosed me with fibromyalgia, which is pain in the muscles. Every day something hurts. However, I am much older than you. When I was your age I felt great. I have a son, 21 yrs. old (he is studying in China right now), but anyway, he has neck problems also, my poor baby. I think he did it lifting weights at the gym, so whatever you do, don't do that!
I go on these type of boards to try to help myself, since doctors are not much help. Like you said, they say everything is fine when you know it's not. If it was fine, no one would go to see them. Do they think we WANT to be there? I get so frustrated. My husband tells me, go to another doctor. I keep trying, but I get burned out. My husband just doesn't want to hear me, he doesn't really care about my pain. We're married a long time, he's OK, but he's not a *talker.* So I come here for support.
NJ is OK. I actually used to live in California. We lived there for two years, I had my son in a hospital in San Jose. It was a really good time in my life. I was young, thin, healthy. Oh, well, I guess I better try to go back to bed, see if I can get any sleep. You can talk to me any time. I'm around a lot.
i'm sorry. it's a strange thing. but i've always had a connection with people that suffer from physical pain and also addiction pain then ones with mental health issues. which is the one i have always been connected with
i really like the sound of your son being in china. sadly most americcans, as myself, don't eve leave. actually rather sadly everything outside of america is taught and looked upon as beyond inferior.
so i think it's cool he's in china. hopefully for reason of choice and interest.
it's funny. maybe not. but when i heard the word herniated i thought it was the same as hernia. i had never heard of the C word and those numbers and lumbar and all that.
though i've known many people who have suffered for years. when i think or thought of someone with back issues i always thought of it as something that is never fixed, even with surgery, but you "just learn to live with it" it reminded me of an almost silent - not respected pain. like the average person just looks and sees and says "get over it" which i would imagine can only make it much worse.
to bad people in general to own more intuition. one doesn't have to literally have ones condition to have an indirect even far off way off indirect connection with some part of it.
though the people that say "oh yeah i know what you mean i have...." and it's something so far different is, from my expierence, beyoind infuriating.
hope you get some rest.
have you had a doctor who is...thinking of the word...generous or caring with medication.
that is one thing i do not understand. why it seems one has to almost beg to be allowed relief. i mean were talking about people that aren't thirteen. one is an adult. but it's like being below a teenager to ask and recieve medication you feel you need.
i think it's a crime from the people i've known and what they have had to go through in that area
i hope you got some sleep...
reese
i really like the sound of your son being in china. sadly most americcans, as myself, don't eve leave. actually rather sadly everything outside of america is taught and looked upon as beyond inferior.
so i think it's cool he's in china. hopefully for reason of choice and interest.
it's funny. maybe not. but when i heard the word herniated i thought it was the same as hernia. i had never heard of the C word and those numbers and lumbar and all that.
though i've known many people who have suffered for years. when i think or thought of someone with back issues i always thought of it as something that is never fixed, even with surgery, but you "just learn to live with it" it reminded me of an almost silent - not respected pain. like the average person just looks and sees and says "get over it" which i would imagine can only make it much worse.
to bad people in general to own more intuition. one doesn't have to literally have ones condition to have an indirect even far off way off indirect connection with some part of it.
though the people that say "oh yeah i know what you mean i have...." and it's something so far different is, from my expierence, beyoind infuriating.
hope you get some rest.
have you had a doctor who is...thinking of the word...generous or caring with medication.
that is one thing i do not understand. why it seems one has to almost beg to be allowed relief. i mean were talking about people that aren't thirteen. one is an adult. but it's like being below a teenager to ask and recieve medication you feel you need.
i think it's a crime from the people i've known and what they have had to go through in that area
i hope you got some sleep...
reese
I read your post and I just wanted to say no one can know exactly what you are going through, but I can empathize with you. So can most people on here. You're not alone in feeling tired and mad and disappointed. I've been injured for 9 months (got hurt at work) and I'm still undiagnosed. Doctors and adjusters and nurses keep telling me to be more patient, we're on the right track now, let's try this, blah, blah, blah. This is my life - your life - everyday you just wonder *how can I possibly get through one more day like this? Let alone another week til I see this doctor or have that test?* Somehow, I do. You do too. But how much longer? I wish you the miracle I haven't had, my friend. I don't know what else to say. I hate it when people say *keep your chin up* or *how unfortunate* How demeaning is it to say these things to someone who has to cry themselves to sheer exhaustion just to get to sleep. They give you all these meds that, at least for me, barely touched my pain and only made me fruity. They treat the symptoms, but can't (or won't) diagnose you, therefore you can never get the cure. Well, you know how it is. I don't need to ramble on about it, but I just wanted to let you know I can identify with much of what you say. Life is too short to have to live this way. I'm here if I can help. Take care. Randi
do you have doctors that don't believe you? i have found that to be one of the biggest problems. they just don't believe that my body wasn't like this before. so they will say you had severe scoliosis and you do not have a leg length issue it's just your leaning etc etc
i got into stanford the second time. which is something i very happy about. but at the same time i am scared that they won't beleive me.
does it sound stupid
to have as many legitamtive people write letters that i can bring / emails stating that i was physiclaly fine.
i have two very famous neuro/psychiatrist
plus the first two doctors i saw after the accident. i think they would write a note.
i wish i could have a person / advocate come with me. is this all very common?
oh. one thing i am lucky about. is i've known quite a few people who went three to four years to finally get diagnosed. by a doctor who says "oh yeah it's this" and that's all it was.
so my questions is two fold
have you had doctors who just don't beleive you?
and
about bringing notes / emaild from doc's that say i wasn't like this. if they need them. i have pictures and movies as well since i am / was an actor
thank you so ******* much writing. you have no idea. thank you thank you
i had a friend i lived with. he had maybe ten t-cells left. they had him on percocet. now percocet is fine. but one builds a tolerance very quickly and it's terrible for your body and its not close to poweful enought to someone in that situation. his doctors would not give him anything higher. the last week of every month he would have to go through withdrawls.
don't know why i am saying this. i want to erase but i don't know why i'm leaving it.
i got into stanford the second time. which is something i very happy about. but at the same time i am scared that they won't beleive me.
does it sound stupid
to have as many legitamtive people write letters that i can bring / emails stating that i was physiclaly fine.
i have two very famous neuro/psychiatrist
plus the first two doctors i saw after the accident. i think they would write a note.
i wish i could have a person / advocate come with me. is this all very common?
oh. one thing i am lucky about. is i've known quite a few people who went three to four years to finally get diagnosed. by a doctor who says "oh yeah it's this" and that's all it was.
so my questions is two fold
have you had doctors who just don't beleive you?
and
about bringing notes / emaild from doc's that say i wasn't like this. if they need them. i have pictures and movies as well since i am / was an actor
thank you so ******* much writing. you have no idea. thank you thank you
i had a friend i lived with. he had maybe ten t-cells left. they had him on percocet. now percocet is fine. but one builds a tolerance very quickly and it's terrible for your body and its not close to poweful enought to someone in that situation. his doctors would not give him anything higher. the last week of every month he would have to go through withdrawls.
don't know why i am saying this. i want to erase but i don't know why i'm leaving it.
Hey Reese,
I can definitely relate in some ways! I haven't been in an accident, but have had freakish symptoms starting a year ago today. I was a marathon runner and felt amazing everyday up until the minute it started, but have never gone back. NO docs believe me at all because 1) I look the picture of perfect health and 2) I have three kids so it must be anxiety. Having no doc take you seriously is by far the most infuriating part of it all. I'm sorry for all the **** you are going through, but you are not alone. I actually just got back from the Mayo Clinic in AZ. Since you already have a friend there you may want to check it out. Of course they can't help me, but it's a pretty well organized place with some pretty good docs. I think they are pretty thorough. I guess I'm just screwed. I'm 35 and probably shouldn't feel like I'm dying every day of my life. You aren't even 30 yet! It seems so unfair. I constantly feel like I'm being struck in the head with a bat and it's going to explode (I've never before even had a headache) and I always have chest pain shooting down my left arm and up my neck into my head along with irregular heart spasms. It's fun. Sorry to vent my sad symptoms on you! Best of luck. I'm also from NY and lived in CA, now in CO .
Heather
I can definitely relate in some ways! I haven't been in an accident, but have had freakish symptoms starting a year ago today. I was a marathon runner and felt amazing everyday up until the minute it started, but have never gone back. NO docs believe me at all because 1) I look the picture of perfect health and 2) I have three kids so it must be anxiety. Having no doc take you seriously is by far the most infuriating part of it all. I'm sorry for all the **** you are going through, but you are not alone. I actually just got back from the Mayo Clinic in AZ. Since you already have a friend there you may want to check it out. Of course they can't help me, but it's a pretty well organized place with some pretty good docs. I think they are pretty thorough. I guess I'm just screwed. I'm 35 and probably shouldn't feel like I'm dying every day of my life. You aren't even 30 yet! It seems so unfair. I constantly feel like I'm being struck in the head with a bat and it's going to explode (I've never before even had a headache) and I always have chest pain shooting down my left arm and up my neck into my head along with irregular heart spasms. It's fun. Sorry to vent my sad symptoms on you! Best of luck. I'm also from NY and lived in CA, now in CO .
Heather
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