Misdiagnosed Miscarriage - Clevelandlady and Claire

[lovinmom]

Does anyone know where Clevelandlady and Claire are?  They were misdiagnosed as having a blighted ovum/miscarriage, but waited things out and ended up with happy pregnancies.  They decided not to have a D&C and ended up having their babies!  There is a wonderful web-site that is collecting cases of misdiagnosis to help other women who are in the midst of their diagnosis.  If you Clevelandlady or Claire are reading this, maybe you would want to post your story?  If there is anyone else reading this, maybe you had the same thing happen?  Maybe you are in the midst of being diagnosed with a blighted ovum or miscarriage, the stories will encourage you.  



http://home.earthlink.net/~misdiagnosed/



We need to get the word out there to help other women.  It is such a tormenting time to be told that there is a dead baby inside of you.  It is best to wait things out just incase there is a misdiagnosis.  I wish you all a happy and safe pregnancy!

[clevelandlady]

Thank you Lovinmom,I'll be sure and write down my experience with this pregnancy.I wanted to thank you for the baby center thread about Blighted ovums and the many cases of misdiagnosis that go on.That thread,and this forum were the only things that kept me going during that almost 2 week wait till i saw the heartbeat.My ob/gyn that delivered my 3 children retired,and i had to find a new one.That "new" DR. was the one that diagnosed the blighted ovum during a VERY early u/s to date the pregnancy.I had protested,saying that my previous DR. never gave a u/s before 8 weeks.The "new" DR. said that was her standard procedure.I'm very glad i went to get a second opinion,as i still felt pregnant.My advice to anyone receiving news they didn't expect ,is to get a second opinion from another DR.You can have a "tilted" uterus,or ovulated really late in your cycle[as i did],which can make your dates off.

[msjwilson]

Thankyou for this I shall be making a mental note of this in future, it sounds very serious that so many women are being put through this! I hate to think how many women have gone ahead with a D&C and still been pregnant :( It breaks my heart!!!

[snagglepuss1]

hi do you mean me??  i was diagnosed as having possible blighted ovum with this pregnancy after previously losing 3 babies, the second preg also being blighted ovum, my 6 week scan showed a slightly bigger sac than the sonographer expected she could not see the baby but she did see a yolk sac. the lady we saw afterwards told us most likely blighted ovum!

i left in tears and came here for consolation, we had a re scan the following week, so i read up on blighted ovum and got more & more confident as the week went by, apparently if a yolk sac is seen it cannot be blighted ovum!

to mine and dhs joy our babies heartbeat was seen a week later, I am now 19 1/2 weeks preg!  with a very healthy and active baby! i think hospitals are too quick to make judgements if measurements dont follow text books etc.

lovin mum how r u? nice to hear from you...

claire

[lovinmom]

Yeah Gals!  I found you!  Yes!  Snagglepuss!  I remembered your name as Claire but couldn't remember your screen name.  Yes to you too Cleveland Lady!  We are trying to collect cases of misdiagnosis and post them at one sight.  Your stories got deleted off of here.  We want to put all the success cases on one sight so that women can go there to be encouraged.  There are already seven other success stories there.  I am so glad that all is well with your pregnancies.  I am still waiting over here.  I am forty now so I feel that my time is running short.  I have many friends who have had successful pregnancies in their forties so that gives me hope.  Its just that my energy is not the same.  I have a 2 1/2 yr. old so I am pretty much on the go.  We will see if things are meant to happen.  If you could post your stories at the above sight, that would be wonderful.  I know that it would help to encourage women!  Take Care!  It is wonderful to hear from you!

[lovinmom]

P.S.  Snagglepuss, do you remember where you read that if there is a yolk sac that it cannot be a true blighted ovum?  I remember reading that myself but cannot find the link.  If you know where you had seen that yourself, I would love to get the reference.  Thanks a heap!  Happy Baby to you all!!!

[snagglepuss1]

jeepers, i'm not sure if i can remember, i'll do some research though, am full of a cold and feeling pretty **** at the moment, hope the baby isn't suffering too much.

lovinmum, i wish you all the success in the world, you deserve so much to be a mum again and i think it will happen for you soon!!



***tons and tons of baby dust to you***



claire

[snagglepuss1]

i found it, it isn't the longest piece of info, but it really helped me



http://www.amersham-health.com/medcyclopaedia/volume%20IV%202BLIGHTED%20OVUM.asp



i will wonder for the rest of my life if my second pregnancy was blighted ovum or not, as after the 2nd scan at 8 weeks, bearing in mind the baby may only have been around 5/6 weeks, they said it was blighted ovum, no blood tests were given to see if my hcg levels were rising, i had a d&c the next day, i wish i had waited it out, i had no bleeding or pain, i had some sickness, things may have been progressing well, but the hospitals opinion was no...its bad. to anyone in this situation i would strongly urge you to wait it out, if nature takes its course then at least you know it was not meant to be, otherwise you could end up like me and so many others. thinking what if? for the rest of your life.

[snagglepuss1]

hmm... first site add may have been slightly wrong try this one



http://www.amersham-health.com/medcyclopaedia/Volume%20IV%202/BLIGHTED%20OVUM.asp

[clevelandlady]

I went and posted my story about this pregnancy on the msn site,under octoberlibramom.Thank you so much,not only for the link,but for your kind,informative words way back when i first posted, right after my first DR. visit.I was a wreck,and you especially helped so much.And,like the poster said above,TONS and TONS of baby dust your way~ Thank you so much,again,

               Laura

[lovinmom]

Thank you so much Snagglepuss and Cleveland Lady.  I just love your names.  They are so cute.  Thanks for the baby dust.  I have been having one of those weeks.  Maybe the dust will make things more exciting.  I wish you two a wonderful rest of your pregnancy and a SMOOTH & QUICK labor!  (-:  Prayers and Hugs to you!!!

[lovinmom]

Cleveland Lady,



I wanted to thank you so much for your post on the sight.  I know that it will help many women.  



Claire,



I know you are not feeling well with the morning sickness, but when you get a chance, could you post your story too?  I know that your story will help a lot of women also.  Especially since a lot of women are diagnosed around the time you were and end up having a D&C.  If they just wait a little bit more, they might see their baby like you did and will continue to see.  



Thank you Gals!  You are a blessing and a light!  Hugs!  Please let me know that you got this message by a post.  If not, I am going to post above so that you know I put out another post for you.

[WannaBeMommy]

Hi, I had put these at another post but that closed !!! so repeating them here : PLEASE HELP

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Posted this on 09/16/04



I had my first pregnancy end in a miscarriage in the 10th week when my OBG did an u/s and didn't see a heartbeat. He said that the fetus stopped growing after the 7th week or so. I had a d&c the week after the u/s when the blood tests confirmed that the HCG levels decreased and another u/s showed a shrinked sac.

Well, all this happened in Dec 2003. I am 7w4d pregnant again based on an LMP of 25th July 2004. Last week, on 7th Sept when I was 6w2d, I noticed a slight brown spotting on the tissue after wiping and immediately called my OBG, who then called me in for an u/s the next day. The u/s showed a ges sac, nothing else !!! Also had an HCG quant blood test that day and a repeat after 48 hrs...the readings increased from 30,000 to 44,000. My doc said that at that high level, they are not expected to double. He scheduled a follow up u/s for today, i.e. 16th Sept. In the past one week I noticed the light brown discharge once again that was preceded by a period like cramp for a minute or two. I also noticed a slight yellow thick discharge yesterday. This again was preceded by a period like pain. The u/s today again showed him ONLY the ges sac and nothing else...although once in a while he could see a small white spot somewhere in the center of the sac...the sac seemed very symmetrical. I have all pg symptoms -increased appetite, frequent urination, nausea sometimes, fatigue, sore nipples. The doc wanted to perform a D&C tomorrow but my husband and I decided to get another u/s done at a better place (a hospital or a diagnostic center) on Tuesday of next week (21st Sept). Also we'll have some HCG tests done to see if the counts are decreasing.

The posts here have given me a little hope and I think it will be a wise decision to wait for some more days before getting the D&C done.



Here's how my HCG levels have changed over time :



On 09/08 - 30,000 (when I was 6w2d)

On 09/10 - 44,000 (when I was 6w4d)

On 09/16 - 82,500 (when I was 7w3d)

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Posted on 09/23/04:



Yesterday on 09/22 when I was 8w2d as per LMP of 07/25, I went to another OBG who ordered for a formal ultrasound at his facility. Even there they couldn't see anything but an empty gestational sac. He said that it has to be a blighted ovum case since at this high an HCG level, they should have seen more (atleast a yolk sac and fetal pole). He is now 100% sure that I have miscarried and left it to us to decide whether I want D&C or natural m/c. I still have some hope as I still feel very pregnant and my nausea has become a little worse the last few days. All other pg symptoms are still there too !!! I had another blood test done yesterday to see how the HCG levels have changed since 09/16 and will get the results of that today. If they have reduced, then I will go in for a D&C, else I will have a repeat u/s next week.



Is it true that at HCG levels so high (greater than 80,000), we should ALWAYS see a yolk sac ???



Please advise what I should do. I don't want to have a d&c if I still have some chances that the baby might be alive !!!

[lovinmom]

Wannabemom,



I just got your message.  I have been out of town.  You are wise to wait things out rather than rushing into a D&C.  Even though you may be miscarring, a natural miscarriage is so much better on your body than a D&C.  I would highly recommend going to the sight above to get additional information.  Also, for more interaction with moms who are very knowledgable in this subject, also go to this other web-site.  



http://home.earthlink.net/~misdiagnosed/



http://bbs.babycenter.com/board/pregnancy/prenatalhealth/1311584/thread/1423524



I have a friend who was having brown blood and clots at 9 weeks.  She ended up having her baby fine.  There is still a chance that the baby is hiding and not showing on the u/s.  Everyone woman's body and baby is different.  Some women may have a tilted uterus and not even know it.  That could cause the baby not to show until later.  There are so many factors.  The mhz of the u/s machine.  I know it is so tormenting to wait things out.  Your body will be happy if you avoid a D&C.  It is very hard on it.  I wish you the best.  I hope that you get this message.  Please write back so I know you got it.  Prayers to you!