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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigment, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
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birthmark

by quandry1,
Hi Doctor. I will do my best to summarize. I was born with a birthmar...

Two recent miscarriages?

by Susie1974,
Hi I have IP diagnosed at birth, my mam had a miscarriage before me...
2

Multiple Miscarrage

by Moosespb,
Anyone here had multi miscarrages related to IP or at least feel that t...

How can i get white blotches of sin back to normal colour?

by gamble21,
I have two questions. 1.I have white dots all around my arms and leg...

Dentures

by palmetto25,
Our dentist said that our daughter could get dentures at age four and t...
1

skin pigmentation

by jackfruit,
i used hydroquinone with tretonion for a fungal infection skin pigment,...
2

Muscle Spasms

by sunshine4u1972,
Does anybody know if the muscle spasms associated with IP can be a long...
1

white spot on penis

by montgomery235,
hello, ive had this for as long as i remember and im wondering if anyon...
1

IP related disorders?

by shashe34,
Hi, I'm just wondering if anyone out there with IP or an IP affected c...
2

Skin Rashes/Blistering

by esatpil,
Hi All, My daughter blisters and rashed were healing extremely well,...
3

Skin Pigmentation/IP

by Mandi1,
My daugher was diagnosed with IP when she was 6 months old. She has n...
2

anyone else??

by lorim321,
We have 3 generations of IP.. my mom has it, I have it and 1 of my daug...
2

Very Worried and Scared

by esatpil,
Hi Everyone, My wife gave birth to our beautiful angel a week ago an...
4

family planning

by smashrck,
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My ...

8 yr old girl dark circles

by kat614,
My daughter is 8, and has horrible dark circles and kind of bags under ...

white spot in shaft of penis

by montgomery235,
hello, im wondering if anyone knows what this is. ive had it for as lo...
2

IP Symptoms

by sophie72,
My daughter, who is 22 months old, has been recently diagnosed with IP,...
1

A Doctor network that has a clue

by Tiph2,
I am a 37 year old Women with IP. My 14 yr. old daughter also has IP. I...
2

Retinal detachment

by Tiph2,
My daughter has retinal Detachment as a result of IP. She is blind in t...
1

How to explain x inactivation and appearance of symptoms

by mikki1177,
Hello, I am a nurse whom recently came across this condition and now...

I have little red dot like shapes on my legs

by matt1300,
I have little red dot like shapes on my legs they are ichy if i scratch...
1

my discoloration cream isn't working anymore

by sadgirl1,
How can i change my hormone level back the way it used to be after usi...
6

3-month-old son was just diagnosed with IP

by modal,
What should I do? I looked up the website, and I am so scared. I would ...
2

IP

by DNV,
I would love to hear from other parents who's children have IP. My daug...
1

pale white patches and spots on cheeks, face on my 7 yr old son

by Ronn_G,
Hi My seven year old son has developed some pale white patches and sp...
1

Pigmentation that started when i was young...

by willowjayne,
Since I was young I remember this blotch of dark pigmented skin on my r...
1

Dark patches on knees

by Isch,
Since giving birth to my son 9 months ago, I have in the last month to...
2

What is the white dot?

by alisa60,
I found a white dot(about 2millimeter) on my 2 months old daugther's st...

Pigment loss

by Fozzy511,
Hi I have recently had a tattoo removed with the laser treatment, altho...
2

I think im pregnant

by alexiasmommy04,
My daughter Alexia has IP there are no other members of my husbands or ...

skin pigmentation

by majofarabia,
my daughter who is 8 has developed skin pigmentation on the mouth circl...
6

Purple Feet?

by Upforfun03,
I have purple feet all the time. They don't turn color in response to t...
Recent Activity
Dorry114 
Dorry114 joined this community
Welcome them!
16 hrs ago